Hello Ann and thank you for asking a question I'm sure will help other girls who are also diagnosed. Best of luck in meeting with your Ocologist/Medica Team.
Even though it is rare, sometimes its rarity can be treated by specific chemos and or clinical trials.
Stay strong, gather the data, and you've taken a brave step to joined the perfect warrior to team to have your back. Please keep us informed.
I also browsed the dx too. It's just another tool to ask questions only.
You're an Irish Lass, my heritage is Ireland county armagh.

Here's the data: It sounds like you're navigating a diagnosis of Mesonephric-like adenocarcinoma (MLA), which is indeed a very rare and relatively recently recognized subtype of gynecologic cancer.

While it is most commonly found in the uterus, it can also occur in the ovaries. Because it mimics the structure of the mesonephric ducts (remnants of embryonic development),
it often doesn't respond to standard treatments the same way more common epithelial ovarian cancers do.

To help you get the most out of your next appointment, you might want to ask:
Pathology Review:
GOOD QUESTION: Was my case reviewed by a specialist pathologist? (Because MLA can be easily mistaken for endometrioid or clear cell carcinoma).

Targeted Therapies: Does my tumor have KRAS mutations? (These are very common in MLA and might open doors to specific targeted drugs).
Surgical Strategy: How does the rare nature of this subtype change the surgical or chemotherapy plan.

Hope some of the questions will be helpful as we take this TREK together!
Hugs for Support!🥰 Kaye

Hi Kaye, the message about the dentist and cold cap was about me (Deborah) not Ann :-)

Thank you ! I eill definitely add these questions for my appointment on the 19th. It's so gard to ubderstand what the best option is, not being a medical professional. Even choosing the right doctor or hospital .

Hello, I was just diagnosed. They told me it's rare. Still waiting to talk to the doctor.

Thanks Deborah and Kaye - sometimes it’s hard to reply to the right comment - don’t eat too many Easter eggs 🤣