Ten years is a long time, and feeling isolated when your specific type of cancer isn't talked about as much is completely understandable. Low-grade serous ovarian carcinoma (LGSOC or LGSC) absolutely deserves more attention β and you deserve to feel seen.
LGSC is a rare subtype, making up only about 6β8% of all ovarian Show Full Answer
Ten years is a long time, and feeling isolated when your specific type of cancer isn't talked about as much is completely understandable. Low-grade serous ovarian carcinoma (LGSOC or LGSC) absolutely deserves more attention β and you deserve to feel seen.
LGSC is a rare subtype, making up only about 6β8% of all ovarian cancers. It tends to affect younger women, with an average diagnosis age of 43. Because it's less common, it can feel like it gets lost in the conversation. Here's what makes LGSC distinct from more commonly discussed types:
- The cancer cells look more similar to normal cells and grow more slowly
- It often develops from borderline ovarian tumors (BOTs)
- It's frequently resistant to standard platinum-based chemotherapy
- Gene mutations involved are typically KRAS or BRAF, not BRCA1/BRCA2
- Hormone therapy (like tamoxifen or aromatase inhibitors) can be an effective treatment option
One study found people with LGSC live an average of 7.6 years after diagnosis β and with 10 years behind you, that's genuinely remarkable and worth celebrating! π
Connecting with others on MyOvarianCancerTeam who specifically have LGSC can help reduce that sense of isolation β there are members there who truly understand this journey.
May 27
Thank you for the information but I know a lot about LGSOC, thatβs how iv survived for ten years. because a lot of people including ovarian oncologist donβt.
I have an amazing oncologist and surgeon. My point is there is no reference to this rare disease on ovarian cancer sites. Where do people with rare diseases that react/behave differently to high grade cancer find support from fellow sufferers and references made to rarer cancers
June 15