Can someone please advise what’s does NED mean please.

Faith, I was having constipation & diarrhea but nothing other than that. My CA125 started to jump to high teens, then 20s and 37. I had not had a scan in a year as I had no symptoms and my CA was steady. By the time I reached CA 125 at 37 I had a 10cm tumor that had wrapped around my colon and adhered to my bladder. Fortunately with a great surgeon he was able to remove all tumors with only taking a small portion of my colon and operated on my bladder to keep it functioning. With my cancer returning while my CA125 was within normal range, we have determining regular CT scans are the right plan for me. Today at my appointment we decided to retest my CA125 in 3 weeks. If my CA125 rises again, we will transfer my May CT scan to April.

I was diagnosed with OV for the third time almost exactly a year ago. I had five rounds of chemo and have been NED for about nine months. I get CT scans and office visits every three months. My next visit is in April and I’m just sure that I will be NED again. Hugs and prayers to ALL of you!

My doctor had me doing CT scans every 3 months after I was NED after chemo. I was on Lynparza for 2 years and had scans every 3 months. During the next year after stopping Lynparza, I got scans every 3 months. I now get scans and CA125 tests every 6 months. It's been 3 1/2 years now NED.

Hi there Susan9,
Frequency of CT scans are based on cancer type, test result from HE-4 (Natera), and if CA125 is trending upward.

Here’s the scale some oncologist use:

After reaching No Evidence of Disease (NED) status and finishing active medication, oncologist surveillance schedules for
CT scans typically follow a tiered frequency that decreases as more time passes without a recurrence.

While exact timing is a personalized clinical decision, standard surveillance models often follow these intervals:
Typical CT Scan Frequency Intervals

First 2 Years (High-Risk Period):
Scans are most frequent during this time, commonly occurring every 3 to 6 months.
Years 3 to 5: If you remain NED, the frequency often shifts to every 6 to 12 months.
After 5 Years: Many protocols move to annual (once a year) imaging or may transition to clinical exams only, depending on the cancer type..

Hope this helps.
🥰Hugs Kaye