In a recent survey of MyOvarianCancerTeam members, respondents discussed the impact ovarian cancer can have on quality of life and emotional well-being. Members also shared which treatments they’ve had to treat their ovarian cancer.
MyOvarianCancerTeam conducted a survey with 58 members in the U.S. who were diagnosed with ovarian cancer.
The survey asked members about:
MyOvarianCancerTeam shares the results of our member surveys so our community can learn, collectively, from each other’s experiences.
Eighty-one percent of MyOvarianCancerTeam members reported that ovarian cancer interferes with quality of life. Two-thirds said it makes it hard to perform everyday chores and that the disease negatively affects their families. They also said ovarian cancer causes pain or discomfort (78 percent) and makes it hard to sleep (64 percent).
“Up early with hip and tummy pain,” a member wrote on the site. “I can’t seem to get much sleep lately.”
The mental health challenges associated with ovarian cancer were also shared by members. They reported feeling anxious (86 percent), stressed (84 percent), and depressed (64 percent).
One MyOvarianCancerTeam member wrote on the site, “Still feeling very anxious and depressed. I just feel I am not the same person I was before all of this.”
Nearly everyone who took the survey reported receiving chemotherapy (98 percent). Surgery was the next most common treatment (90 percent).
The large majority have had two or more chemotherapy regimens to treat their ovarian cancer. One MyOvarianCancerTeam member wrote, “Started chemo — again.”
“Since my initial treatments for OC, I have been on two other different chemos,” another member shared.
MyOvarianCancerTeam is a social network for people living with ovarian cancer. On MyOvarianCancerTeam, more than 6,600 members come together to ask questions, give advice, and share their stories with others who understand what it’s like to be living with ovarian cancer.
How does ovarian cancer affect your life? What advice do you have for others? Describe your experience in the comments below ,or start a conversation by posting on your Activities page. As one member shared, “I love the support I get here, tips, practical advice, and encouragement.”
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A MyOvarianCancerTeam Member
yes, same here. 1 year and 9 months since the start of chemo, 1 year and 4 months since the end. no improvement, i feel it's getting worse. i'm 66.5 maybe it's dementia?
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