Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyOvarianCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What is the highest CA-125 value that you'va had or you've heard of?

A MyOvarianCancerTeam Member asked a question 💭
Lima, Peru

I am asking this because I got my CA-125 and it is on 10,800.
I know it is extremely high, at the point where my treatment team have been clear that they are only giving me some time. So I am borrowed time. But I am scared, because I though I had much time left...
But, if maybe, and just maybe of you have heard of a CA-125 higher (by much hopefully)?
(Sorry the texts are on Spanish, I'm from Lima, Peru... But you get the idea.)

May 14
 · 
Reactions

Answer Summary

Members rallied around a question about high CA-125 values, with many sharing their own numbers, including one member whose level reached... Read more

Members rallied around a question about high CA-125 values, with many sharing their own numbers, including one member whose level reached 23,629 before dropping to 25, offering real hope. Several members encouraged self-advocacy, seeking second or third opinions, and exploring clinical trials, while the original poster shared her detailed five-line treatment history, rare mucinous subtype diagnosis, and the careful work of her trusted oncologists in Peru and the US. A recurring theme was fierce emotional support, reminding her that she is a warrior with an entire community standing behind her.

A MyOvarianCancerTeam Member

Mine was 12000 when I was diagnosed in 2022… hang in there be strong fight for yourself

May 26
A MyOvarianCancerTeam Member

Advocate for yourself - be the squeaky wheel and demand treatment alternatives. If your doctors are trying to ignore you or write you off screw them and get another opinion and even a third. We love you and will help you not only squeak but yell at the top of our lungs! XOXO !🩵🩵🩵🩵🩵🩵🩵🙏🏻

May 14
A MyOvarianCancerTeam Member

12:10am Friday
Hi Analu
Virginia is right!!!!
I posted information about your high CA125 you mentioned.
Go to your page. It is long but good info.
It can go up to 48,000+
Hang in there.
Thinking about you,
🥰 Kaye

May 14
A MyOvarianCancerTeam Member

Mine was 24,629 on 12/18/24. Now it is 25. Let me know if you want details.

May 26 (edited)
A MyOvarianCancerTeam Member

I agree you have to advocate for yourself or be pushed aside. The biggest reason our OC is so far along when diagnosed is that - in my opinion- doctors aren’t taught enough about it and don’t recognize the early signs. I was Grade 3C when diagnosed- guess who found it - my gastroenterologists NP! I thank God for her. It’s been since 2017 and this blasted varmint just won’t go away but neither will I!! 🩵🩵🩵🩵

May 17

Related Questions

View All

CA125 has increased 5x in two months.

A MyOvarianCancerTeam Member asked a question 💭
Toronto, ON
September 8, 2025

Tumor Markers

A MyOvarianCancerTeam Member asked a question 💭
West Branch, MI
July 4, 2024

Understanding the CA-125 Blood Test for Ovarian Cancer
What Chris Evert’s Ovarian Cancer Diagnosis Does for the Rest of Us
What Christiane Amanpour’s Ovarian Cancer Diagnosis Does for the Rest of Us
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In