My fb family .how r you .I did hysterectomy due to ovarian ..I did five chemo paxel and three internal Radiation .since 2021. Having hipp and pelvic pain . Did two Pet Scan. The first one lymphmole .so I'm doing IMMUTHEARPY. One more last month .show improving . Just can't remember the blood test I did it was 9 .now 7 .it have to go down more .will update u

I saw in the responses that a number of people had endometriod. Cancer. I had it too, and no one has mentioned it again. I also had endometrial of the uterine wall but no one thought that they were very dangerous and they were just different ending because of where they were.
They said it was not as aggressive as clear cell, but my clear cell is now thought to be a different cancer. NowI saw something about what they had given a special name, from my records at MD Anderson, which said it was endometriod but more aggressive than regularly.
Who knows.

I was diagnosed with synchronous uterine and ovarian in 2021. My ovarian is endometrioid 3a.
My CT scan in November of 2022 was misread as NED, even though there were 2 masses already there. The idea that I was walking around for 6 + months with untreated masses is utterly terrifying. I ended up with recurrence and these recurrence masses are most likely port site contamination. My first doctor was not suspecting cancer and was not careful during laparoscopic surgery, and I ended up with contamination. My new masses were exactly under the port sites.
I had a third surgery in May of 2023 and am trying Keytruda/Lenvima protocol now ( even though genomic test did not produce the match). I went out for 2nd and 3rd opinions.
I am so furious that my scan was misread and that I ended up with port site contamination!!!

2017 diagnosed endometrioid adenocarcinoma Stage 1C at 67 years old. ( I had severe endometriosis when i was younger) Treatment: Surgery and carbo/ abraxane x 6. 2020 ,had a very limited recurrance. Had a severe reaction to carbo that was shrinking tiny lesion near sigmoid colon, so had laparotomy to remove it as couldn't continue with chemo. NED 3 years. Not on maintenance treatment. I follow a very healthy Whole Food Plant- Based Diet.

oops no mention of reoccurrence yet tg...I am just 2 months out