I have been on KeyTruda since February 2023. I get KeyTruda every three weeks. My CA125 came down shortly after I started it. My oncologist was going to put me on carbo/taxol and I said “heck NO!! I just got my hair back in and I’m not allowing that chemical to kill anymore good cells I have”. The dr then studied my tumor report from pathology (when I had my original surgery for OV 2021) and found that my bio-markers on my tumors were a good match for KeyTruda. So he completely changed his mind on using the carbo/taxol. He insisted 1000% to use KeyTruda! My side effects are a cough (I already had one so now it’s even worse but I’ll put up with it!) and fatigue. Other than that, no hair loss, no pain etc. My dr has ordered at least 24 infusions (35 minutes long). I just had #9 Thursday August 10th. My Medicare covers most of it. Each treatment is extremely expensive so I’m not sure what regular insurance would or would not cover. I hope this helps! I’m on nothing else but KeyTruda (as far as treatment goes) and my CA stays around 13. I am very happy with KeyTruda.

Have your oncologist's office check with Merk (the manufacturer)as they have a program to provide it free. I suspect they gather information on how it works with unapproved cancers so they can apply for approval. As far as I am concerned that is a win/win for all of us. Don't know ife Medicare is paying part of the cost and Merck is picking up the difference but I know I don't pay a.pemny.

I am on Keytruda nfusions every 3 weeks. My gyn-onc said he has had to fight with the insurance companies for approval and he did not win all of those battles. My oncologist said that due to the fact that I had the anaphylaxis shock reaction to the Taxol that helped my case.

I just had my PET Scan and all the areas that were clear of cancer from chemo are still clear. However, the areas that were still active (liver and a few lymph nodes) on my last scan but had shrunk, showed a slight increase. In another group some people said that they had increase before shrinkage. Another person said she did not see shrinkage until after 3 months of Keytruda. I have just started the 3rd month so I hope my next scan will show shrinkage.

Thanks for that info Jansiking! As for the mutations, I have no idea yet whether I am even eligible for Keytruda, but we shall see. That’s amazing that you have been NED for so long!

I am on Ketruda along with Avastin every 3 weeks and an oral chemo daily.. Citoxin. So far 😊 good